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On January 17th, 2005, we
received test results back that confirmed our fears that our daughter
Elizabeth, who was born on November 1st, 2004, had Cystic Fibrosis.
Less than six months before that, we had started this web business not
knowing how important it would become to our family and our daily
lives. Krista, my wife, couldn't return to work as a Dental Hygienist
because of the germs she would bring home and also because of the nearly
constant care that Elizabeth required from that day forward.
Thank you for your support!!!
Seth, Krista, Nicholas and Elizabeth Anderson
Update - June 21, 2007:
A lot has changed since the first
note above. In 2006 Elizabeth spent 17 weeks in the hospital.
The visits were on and off for 1 to 4 week intervals and 16 of the 17
weeks were all between January and June. It was an exhausting
year. Since June '06 she has only spent one week in the hospital
and it was for a semi-voluntary feeding/behavior modification trial.
At the time, she didn't (wouldn't) take any food by mouth and would
throw up most of what was given to her through her tube (in her
stomach). About two months after the visit she just stopped
throwing up one day. About 2-3 weeks later, she started eating on
her own. She still get's a booster feeding through the night, but
she now eats like a picky toddler.
Update - May 10, 2010
Wow. What a difference time brings. Elizabeth is now five and excited
about her birthday even though it's still six months away. In her first
three years, Elizabeth was in the hospital for 26 weeks. Since then, she
hasn't been back! A lot of that is because of new drugs that the CF
foundation helped fund, with the main one being Tobi, which is an
inhaled antibiotic. She's on that twice a day for a month every other
month. So far, she hasn't even had the hint of an infection (which
is what causes the permanent lung damage). She also just started a new
enzyme (helps with digestion) that's helped her gain 3 lbs in a month
(which is more than she's ever gained in even a three month period!).
Thank you to all of our customers who send words of encouragement.
To this day we still get about 1-2 emails per month about Elizabeth and
we do appreciate them!
Site last updated 01/21/2012 by Seth Anderson.
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